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July 20, 2004

Comments

Cathy

Son diagnosed Oct '04 w/ KC in left eye at this point. Seems to be advanced. He does not communicate health problems-we were not able to notice this until he began rubbing eye alot. Follow up opth appt next week. Now on eye drops of steroid & antibiotic.

A question I have is: Does one feel pain from KC? Does not indicate pain although sometimes he seems something is bothering him. Not definate.

He is severly retarted, developmentally delayed, deaf w/ autism and is difficult to treat in many ways. Contacts & glasses not an option. Next week another Opth appt to f/u and get more info. Is anyone out there familiar w/ others who are developmentally delayed and dealing w/ KC. Just like all of us he needs his sight. Being deaf he relies on his sight to get his input from the world around him. Want to be sure to get great answers and treatment. Any input someone has to share would be appreciated.

bogie

KC causes pain for some people and doesn't for others - but no one is sure why. Additionally, dry eyes are common for people with KC, which can cause a burning or itching sensation.

What sad circumstances!

Magnus

I just added a link to your blog as well. Please let me know if you mind.

Take care,
Magnus

bogie

I most certainly don't mind.

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